The impact of delayed sleep phase disorder on adolescents and their family

Koen Montie, Laury Quaedackers, Vera Perlitius, Els van der Horst, Nele L.E. Vandenbussche, Sebastiaan Overeem, Sigrid Pillen (Corresponding author)

Onderzoeksoutput: Bijdrage aan tijdschriftTijdschriftartikelAcademicpeer review

Uittreksel

Introduction: We investigated the impact of delayed sleep phase disorder (DSPD) on the daily lives of adolescents and their families. Method: In this qualitative study, six adolescents with DSPD, and six parents were given in-depth interviews. Using thematic analysis, we merged open codes into themes that reflected the impact of the disorder. Result: We identified five themes: (1) Impact on the adolescents' school and social life: describing the negative influence of DSPD on school performance and friendships. (2) Impact on the parents, feeling guilty and powerless: showing the consequences of many unsuccessful attempts to improve the situation, with a lack of understanding from their social support system. (3) Impact on the family, conflicts, and misunderstanding: describing the negative influence on other family members, family relationships, and home atmosphere. (4) Impact on the parents, being weary of everything: describing the effect on the parents' mood and social life. (5) Factors mediating the severity of impact, of which personal characteristics and school support seemed most important. Themes 2 to 4 were highly interrelated. Conclusions: Adolescent DSPD not only affects cognitive functioning and mental health but has a much broader impact, also affecting social life, family life, and parental well-being. This information provides new potential points of engagement for therapy, guidance, and support for these families. Greater awareness and recognition of the impact of DSPD is needed on the part of physicians as well as the general population, to increase support and reduce misunderstanding of these adolescents and their parents.

TaalEngels
Pagina's15-22
Aantal pagina's8
TijdschriftSleep Medicine
Volume64
DOI's
StatusGepubliceerd - 1 dec 2019

Vingerafdruk

Parents
Family Conflict
Family Relations
Atmosphere
Social Support
Mental Health
Emotions
Sleep Wake Disorders
Interviews
Physicians
Population
Therapeutics

Trefwoorden

    Citeer dit

    Montie, Koen ; Quaedackers, Laury ; Perlitius, Vera ; van der Horst, Els ; Vandenbussche, Nele L.E. ; Overeem, Sebastiaan ; Pillen, Sigrid. / The impact of delayed sleep phase disorder on adolescents and their family. In: Sleep Medicine. 2019 ; Vol. 64. blz. 15-22
    @article{0c8f8507708544c8be08565482f7728e,
    title = "The impact of delayed sleep phase disorder on adolescents and their family",
    abstract = "Introduction: We investigated the impact of delayed sleep phase disorder (DSPD) on the daily lives of adolescents and their families. Method: In this qualitative study, six adolescents with DSPD, and six parents were given in-depth interviews. Using thematic analysis, we merged open codes into themes that reflected the impact of the disorder. Result: We identified five themes: (1) Impact on the adolescents' school and social life: describing the negative influence of DSPD on school performance and friendships. (2) Impact on the parents, feeling guilty and powerless: showing the consequences of many unsuccessful attempts to improve the situation, with a lack of understanding from their social support system. (3) Impact on the family, conflicts, and misunderstanding: describing the negative influence on other family members, family relationships, and home atmosphere. (4) Impact on the parents, being weary of everything: describing the effect on the parents' mood and social life. (5) Factors mediating the severity of impact, of which personal characteristics and school support seemed most important. Themes 2 to 4 were highly interrelated. Conclusions: Adolescent DSPD not only affects cognitive functioning and mental health but has a much broader impact, also affecting social life, family life, and parental well-being. This information provides new potential points of engagement for therapy, guidance, and support for these families. Greater awareness and recognition of the impact of DSPD is needed on the part of physicians as well as the general population, to increase support and reduce misunderstanding of these adolescents and their parents.",
    keywords = "Adolescents, Delayed sleep phase syndrome, Family, Impact, School, Social functioning",
    author = "Koen Montie and Laury Quaedackers and Vera Perlitius and {van der Horst}, Els and Vandenbussche, {Nele L.E.} and Sebastiaan Overeem and Sigrid Pillen",
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    month = "12",
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    The impact of delayed sleep phase disorder on adolescents and their family. / Montie, Koen; Quaedackers, Laury; Perlitius, Vera; van der Horst, Els; Vandenbussche, Nele L.E.; Overeem, Sebastiaan; Pillen, Sigrid (Corresponding author).

    In: Sleep Medicine, Vol. 64, 01.12.2019, blz. 15-22.

    Onderzoeksoutput: Bijdrage aan tijdschriftTijdschriftartikelAcademicpeer review

    TY - JOUR

    T1 - The impact of delayed sleep phase disorder on adolescents and their family

    AU - Montie,Koen

    AU - Quaedackers,Laury

    AU - Perlitius,Vera

    AU - van der Horst,Els

    AU - Vandenbussche,Nele L.E.

    AU - Overeem,Sebastiaan

    AU - Pillen,Sigrid

    PY - 2019/12/1

    Y1 - 2019/12/1

    N2 - Introduction: We investigated the impact of delayed sleep phase disorder (DSPD) on the daily lives of adolescents and their families. Method: In this qualitative study, six adolescents with DSPD, and six parents were given in-depth interviews. Using thematic analysis, we merged open codes into themes that reflected the impact of the disorder. Result: We identified five themes: (1) Impact on the adolescents' school and social life: describing the negative influence of DSPD on school performance and friendships. (2) Impact on the parents, feeling guilty and powerless: showing the consequences of many unsuccessful attempts to improve the situation, with a lack of understanding from their social support system. (3) Impact on the family, conflicts, and misunderstanding: describing the negative influence on other family members, family relationships, and home atmosphere. (4) Impact on the parents, being weary of everything: describing the effect on the parents' mood and social life. (5) Factors mediating the severity of impact, of which personal characteristics and school support seemed most important. Themes 2 to 4 were highly interrelated. Conclusions: Adolescent DSPD not only affects cognitive functioning and mental health but has a much broader impact, also affecting social life, family life, and parental well-being. This information provides new potential points of engagement for therapy, guidance, and support for these families. Greater awareness and recognition of the impact of DSPD is needed on the part of physicians as well as the general population, to increase support and reduce misunderstanding of these adolescents and their parents.

    AB - Introduction: We investigated the impact of delayed sleep phase disorder (DSPD) on the daily lives of adolescents and their families. Method: In this qualitative study, six adolescents with DSPD, and six parents were given in-depth interviews. Using thematic analysis, we merged open codes into themes that reflected the impact of the disorder. Result: We identified five themes: (1) Impact on the adolescents' school and social life: describing the negative influence of DSPD on school performance and friendships. (2) Impact on the parents, feeling guilty and powerless: showing the consequences of many unsuccessful attempts to improve the situation, with a lack of understanding from their social support system. (3) Impact on the family, conflicts, and misunderstanding: describing the negative influence on other family members, family relationships, and home atmosphere. (4) Impact on the parents, being weary of everything: describing the effect on the parents' mood and social life. (5) Factors mediating the severity of impact, of which personal characteristics and school support seemed most important. Themes 2 to 4 were highly interrelated. Conclusions: Adolescent DSPD not only affects cognitive functioning and mental health but has a much broader impact, also affecting social life, family life, and parental well-being. This information provides new potential points of engagement for therapy, guidance, and support for these families. Greater awareness and recognition of the impact of DSPD is needed on the part of physicians as well as the general population, to increase support and reduce misunderstanding of these adolescents and their parents.

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    KW - Delayed sleep phase syndrome

    KW - Family

    KW - Impact

    KW - School

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    U2 - 10.1016/j.sleep.2019.05.022

    DO - 10.1016/j.sleep.2019.05.022

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