The ethics of uncertainty for data subjects

Onderzoeksoutput: Hoofdstuk in Boek/Rapport/CongresprocedureHoofdstukAcademicpeer review

Uittreksel

Modern health data practices come with many practical uncertainties. In this paper, I argue that data subjects’ trust in the institutions and organizations that control their data, and their ability to know their own moral obligations in relation to their data, are undermined by significant uncertainties regarding the what, how, and who of mass data collection and analysis. I conclude by considering how proposals for managing situations of high uncertainty might be applied to this problem. These emphasize increasing organizational flexibility, knowledge, and capacity, and reducing hazard.
TaalEngels
TitelThe Ethics of Medical Data Donation
RedacteurenJ Krutzinna, L Floridi
Plaats van productieCham
UitgeverijSpringer
Hoofdstuk4
Pagina's55-74
Aantal pagina's20
ISBN van elektronische versie978-3-030-04363-6
ISBN van geprinte versie978-3-030-04362-9
DOI's
StatusGepubliceerd - 2019

Publicatie series

NaamPhilosophical Studies Series
Volume137

Vingerafdruk

moral philosophy
uncertainty
Organization and Institution
obligation
data analysis
flexibility
ability
health

Citeer dit

Nickel, P. J. (2019). The ethics of uncertainty for data subjects. In J. Krutzinna, & L. Floridi (editors), The Ethics of Medical Data Donation (blz. 55-74). (Philosophical Studies Series; Vol. 137). Cham: Springer. DOI: 10.1007/978-3-030-04363-6_4
Nickel, P.J./ The ethics of uncertainty for data subjects. The Ethics of Medical Data Donation. redacteur / J Krutzinna ; L Floridi. Cham : Springer, 2019. blz. 55-74 (Philosophical Studies Series).
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Nickel, PJ 2019, The ethics of uncertainty for data subjects. in J Krutzinna & L Floridi (redactie), The Ethics of Medical Data Donation. Philosophical Studies Series, vol. 137, Springer, Cham, blz. 55-74. DOI: 10.1007/978-3-030-04363-6_4

The ethics of uncertainty for data subjects. / Nickel, P.J.

The Ethics of Medical Data Donation. redactie / J Krutzinna; L Floridi. Cham : Springer, 2019. blz. 55-74 (Philosophical Studies Series; Vol. 137).

Onderzoeksoutput: Hoofdstuk in Boek/Rapport/CongresprocedureHoofdstukAcademicpeer review

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Nickel PJ. The ethics of uncertainty for data subjects. In Krutzinna J, Floridi L, redacteurs, The Ethics of Medical Data Donation. Cham: Springer. 2019. blz. 55-74. (Philosophical Studies Series). Beschikbaar vanaf, DOI: 10.1007/978-3-030-04363-6_4