The Ethics of Uncertainty for Data Subjects

Onderzoeksoutput: Hoofdstuk in Boek/Rapport/CongresprocedureHoofdstukAcademicpeer review

3 Citaten (Scopus)
47 Downloads (Pure)


Modern health data practices come with many practical uncertainties. In this paper, I argue that data subjects’ trust in the institutions and organizations that control their data, and their ability to know their own moral obligations in relation to their data, are undermined by significant uncertainties regarding the what, how, and who of mass data collection and analysis. I conclude by considering how proposals for managing situations of high uncertainty might be applied to this problem. These emphasize increasing organizational flexibility, knowledge, and capacity, and reducing hazard.

Originele taal-2Engels
TitelThe Ethics of Medical Data Donation
RedacteurenJ Krutzinna, L Floridi
Plaats van productieCham
Aantal pagina's20
ISBN van elektronische versie978-3-030-04363-6
ISBN van geprinte versie978-3-030-04362-9
StatusGepubliceerd - 2019

Publicatie series

NaamPhilosophical Studies Series
ISSN van geprinte versie0921-8599
ISSN van elektronische versie2542-8349

Bibliografische nota

Publisher Copyright:
© The Author(s) 2019.

Copyright 2021 Elsevier B.V., All rights reserved.


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