The ethics of uncertainty for data subjects

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Abstract

Modern health data practices come with many practical uncertainties. In this paper, I argue that data subjects’ trust in the institutions and organizations that control their data, and their ability to know their own moral obligations in relation to their data, are undermined by significant uncertainties regarding the what, how, and who of mass data collection and analysis. I conclude by considering how proposals for managing situations of high uncertainty might be applied to this problem. These emphasize increasing organizational flexibility, knowledge, and capacity, and reducing hazard.
Original languageEnglish
Title of host publicationThe Ethics of Medical Data Donation
EditorsJ Krutzinna, L Floridi
Place of PublicationCham
PublisherSpringer
Chapter4
Pages55-74
Number of pages20
ISBN (Electronic)978-3-030-04363-6
ISBN (Print)978-3-030-04362-9
DOIs
Publication statusPublished - 2019

Publication series

NamePhilosophical Studies Series
Volume137

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  • Cite this

    Nickel, P. J. (2019). The ethics of uncertainty for data subjects. In J. Krutzinna, & L. Floridi (Eds.), The Ethics of Medical Data Donation (pp. 55-74). (Philosophical Studies Series; Vol. 137). Cham: Springer. https://doi.org/10.1007/978-3-030-04363-6_4