The ethics of uncertainty for data subjects

Research output: Chapter in Book/Report/Conference proceedingChapterAcademicpeer-review

Abstract

Modern health data practices come with many practical uncertainties. In this paper, I argue that data subjects’ trust in the institutions and organizations that control their data, and their ability to know their own moral obligations in relation to their data, are undermined by significant uncertainties regarding the what, how, and who of mass data collection and analysis. I conclude by considering how proposals for managing situations of high uncertainty might be applied to this problem. These emphasize increasing organizational flexibility, knowledge, and capacity, and reducing hazard.
LanguageEnglish
Title of host publicationThe Ethics of Medical Data Donation
EditorsJ Krutzinna, L Floridi
Place of PublicationCham
PublisherSpringer
Chapter4
Pages55-74
Number of pages20
ISBN (Electronic)978-3-030-04363-6
ISBN (Print)978-3-030-04362-9
DOIs
StatePublished - 2019

Publication series

NamePhilosophical Studies Series
Volume137

Fingerprint

moral philosophy
uncertainty
Organization and Institution
obligation
data analysis
flexibility
ability
health

Cite this

Nickel, P. J. (2019). The ethics of uncertainty for data subjects. In J. Krutzinna, & L. Floridi (Eds.), The Ethics of Medical Data Donation (pp. 55-74). (Philosophical Studies Series; Vol. 137). Cham: Springer. DOI: 10.1007/978-3-030-04363-6_4
Nickel, P.J./ The ethics of uncertainty for data subjects. The Ethics of Medical Data Donation. editor / J Krutzinna ; L Floridi. Cham : Springer, 2019. pp. 55-74 (Philosophical Studies Series).
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Nickel, PJ 2019, The ethics of uncertainty for data subjects. in J Krutzinna & L Floridi (eds), The Ethics of Medical Data Donation. Philosophical Studies Series, vol. 137, Springer, Cham, pp. 55-74. DOI: 10.1007/978-3-030-04363-6_4

The ethics of uncertainty for data subjects. / Nickel, P.J.

The Ethics of Medical Data Donation. ed. / J Krutzinna; L Floridi. Cham : Springer, 2019. p. 55-74 (Philosophical Studies Series; Vol. 137).

Research output: Chapter in Book/Report/Conference proceedingChapterAcademicpeer-review

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Nickel PJ. The ethics of uncertainty for data subjects. In Krutzinna J, Floridi L, editors, The Ethics of Medical Data Donation. Cham: Springer. 2019. p. 55-74. (Philosophical Studies Series). Available from, DOI: 10.1007/978-3-030-04363-6_4