Integrating Real-World Data and Computational Guidelines: Designing a Dashboard for Nationwide Evaluation of Molecular Diagnostics in Oncology

Robin Pasman; Femke J.C. Jacobs; Rik Eshuis; Cor D. de Kroon; Matthijs Sloep; Jurrian van der Werf; Kees C.W.J. Ebben

doi:10.3233/SHTI250631

Integrating Real-World Data and Computational Guidelines: Designing a Dashboard for Nationwide Evaluation of Molecular Diagnostics in Oncology

Robin Pasman (Corresponding author)
, Femke J.C. Jacobs
, Rik Eshuis
, Cor D. de Kroon
, Matthijs Sloep
, Jurrian van der Werf
, Kees C.W.J. Ebben

Information Systems IE&IS

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › Academic › peer-review

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Abstract

Molecular diagnostics is essential for personalized treatment in oncology. However, nationwide insight into the use of molecular diagnostics in clinical practice and corresponding outcomes is lacking. This project focuses on the design, development and evaluation of a prototype dashboard that combines data from national registries and computational guidelines to reveal missing insights in molecular diagnostics in the Netherlands. Stakeholder input and practical testing highlighted challenges with data availability and usability. The project demonstrates the feasibility of using real-world data and computational guidelines to create a dashboard, supporting a continuous short-cycle learning process to enhance patient care.

Original language	English
Title of host publication	Intelligent Health Systems – From Technology to Data and Knowledge
Subtitle of host publication	Proceedings of MIE 2025
Editors	Elisavet Andrikopoulou, Parissis Gallos, Theodoros N. Arvanitis, Rosalynn Austin, Arriel Bennis, Ronald Cornet, Panagiotis Chatzistergos, Alexander Dejaco, Linda Dusseljee-Peute, Alaa Mohasseb, Pantelis Natsiavas, Haythem Nakkas, Philip Scott
Publisher	IOS Press
Pages	1393-1397
Number of pages	5
ISBN (Electronic)	978-1-64368-596-0
DOIs	https://doi.org/10.3233/SHTI250631
Publication status	Published - 2025
Event	35th Medical Informatics Europe Conference, MIE 2025 - Glasgow, United Kingdom Duration: 19 May 2025 → 21 May 2025

Publication series

Name	Studies in Health Technology and Informatics
Volume	327
ISSN (Print)	0926-9630
ISSN (Electronic)	1879-8365

Conference

Conference	35th Medical Informatics Europe Conference, MIE 2025
Abbreviated title	MIE 2025
Country/Territory	United Kingdom
City	Glasgow
Period	19/05/25 → 21/05/25

Keywords

Humans
Netherlands
Neoplasms/diagnosis
Medical Oncology/standards
Practice Guidelines as Topic
Molecular Diagnostic Techniques/standards
Registries
User-Computer Interface
Pathology, Molecular/standards
Short-cycle evaluation
Observational data
Decision algorithms
Genetic testing
Cancer

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

Access to Document

10.3233/SHTI250631

pdfFinal published version, 696 KBLicence: CC BY-NC

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Pasman, R., Jacobs, F. J. C., Eshuis, R., de Kroon, C. D., Sloep, M., van der Werf, J., & Ebben, K. C. W. J. (2025). Integrating Real-World Data and Computational Guidelines: Designing a Dashboard for Nationwide Evaluation of Molecular Diagnostics in Oncology. In E. Andrikopoulou, P. Gallos, T. N. Arvanitis, R. Austin, A. Bennis, R. Cornet, P. Chatzistergos, A. Dejaco, L. Dusseljee-Peute, A. Mohasseb, P. Natsiavas, H. Nakkas, & P. Scott (Eds.), Intelligent Health Systems – From Technology to Data and Knowledge: Proceedings of MIE 2025 (pp. 1393-1397). (Studies in Health Technology and Informatics; Vol. 327). IOS Press. https://doi.org/10.3233/SHTI250631

Pasman, Robin ; Jacobs, Femke J.C. ; Eshuis, Rik et al. / Integrating Real-World Data and Computational Guidelines : Designing a Dashboard for Nationwide Evaluation of Molecular Diagnostics in Oncology. Intelligent Health Systems – From Technology to Data and Knowledge: Proceedings of MIE 2025. editor / Elisavet Andrikopoulou ; Parissis Gallos ; Theodoros N. Arvanitis ; Rosalynn Austin ; Arriel Bennis ; Ronald Cornet ; Panagiotis Chatzistergos ; Alexander Dejaco ; Linda Dusseljee-Peute ; Alaa Mohasseb ; Pantelis Natsiavas ; Haythem Nakkas ; Philip Scott. IOS Press, 2025. pp. 1393-1397 (Studies in Health Technology and Informatics).

@inproceedings{6585443239f1488fb7669b07f4dd34f1,

title = "Integrating Real-World Data and Computational Guidelines: Designing a Dashboard for Nationwide Evaluation of Molecular Diagnostics in Oncology",

abstract = "Molecular diagnostics is essential for personalized treatment in oncology. However, nationwide insight into the use of molecular diagnostics in clinical practice and corresponding outcomes is lacking. This project focuses on the design, development and evaluation of a prototype dashboard that combines data from national registries and computational guidelines to reveal missing insights in molecular diagnostics in the Netherlands. Stakeholder input and practical testing highlighted challenges with data availability and usability. The project demonstrates the feasibility of using real-world data and computational guidelines to create a dashboard, supporting a continuous short-cycle learning process to enhance patient care.",

keywords = "Humans, Netherlands, Neoplasms/diagnosis, Medical Oncology/standards, Practice Guidelines as Topic, Molecular Diagnostic Techniques/standards, Registries, User-Computer Interface, Pathology, Molecular/standards, Short-cycle evaluation, Observational data, Decision algorithms, Genetic testing, Cancer",

author = "Robin Pasman and Jacobs, \{Femke J.C.\} and Rik Eshuis and \{de Kroon\}, \{Cor D.\} and Matthijs Sloep and \{van der Werf\}, Jurrian and Ebben, \{Kees C.W.J.\}",

year = "2025",

doi = "10.3233/SHTI250631",

language = "English",

series = "Studies in Health Technology and Informatics",

publisher = "IOS Press",

pages = "1393--1397",

editor = "Elisavet Andrikopoulou and Parissis Gallos and Arvanitis, \{Theodoros N.\} and Rosalynn Austin and Arriel Bennis and Ronald Cornet and Panagiotis Chatzistergos and Alexander Dejaco and Linda Dusseljee-Peute and Alaa Mohasseb and Pantelis Natsiavas and Haythem Nakkas and Philip Scott",

booktitle = "Intelligent Health Systems – From Technology to Data and Knowledge",

address = "Netherlands",

note = "35th Medical Informatics Europe Conference, MIE 2025, MIE 2025 ; Conference date: 19-05-2025 Through 21-05-2025",

}

Pasman, R, Jacobs, FJC, Eshuis, R, de Kroon, CD, Sloep, M, van der Werf, J & Ebben, KCWJ 2025, Integrating Real-World Data and Computational Guidelines: Designing a Dashboard for Nationwide Evaluation of Molecular Diagnostics in Oncology. in E Andrikopoulou, P Gallos, TN Arvanitis, R Austin, A Bennis, R Cornet, P Chatzistergos, A Dejaco, L Dusseljee-Peute, A Mohasseb, P Natsiavas, H Nakkas & P Scott (eds), Intelligent Health Systems – From Technology to Data and Knowledge: Proceedings of MIE 2025. Studies in Health Technology and Informatics, vol. 327, IOS Press, pp. 1393-1397, 35th Medical Informatics Europe Conference, MIE 2025, Glasgow, United Kingdom, 19/05/25. https://doi.org/10.3233/SHTI250631

Integrating Real-World Data and Computational Guidelines: Designing a Dashboard for Nationwide Evaluation of Molecular Diagnostics in Oncology. / Pasman, Robin (Corresponding author); Jacobs, Femke J.C.; Eshuis, Rik et al.
Intelligent Health Systems – From Technology to Data and Knowledge: Proceedings of MIE 2025. ed. / Elisavet Andrikopoulou; Parissis Gallos; Theodoros N. Arvanitis; Rosalynn Austin; Arriel Bennis; Ronald Cornet; Panagiotis Chatzistergos; Alexander Dejaco; Linda Dusseljee-Peute; Alaa Mohasseb; Pantelis Natsiavas; Haythem Nakkas; Philip Scott. IOS Press, 2025. p. 1393-1397 (Studies in Health Technology and Informatics; Vol. 327).

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › Academic › peer-review

TY - GEN

T1 - Integrating Real-World Data and Computational Guidelines

T2 - 35th Medical Informatics Europe Conference, MIE 2025

AU - Pasman, Robin

AU - Jacobs, Femke J.C.

AU - Eshuis, Rik

AU - de Kroon, Cor D.

AU - Sloep, Matthijs

AU - van der Werf, Jurrian

AU - Ebben, Kees C.W.J.

PY - 2025

Y1 - 2025

N2 - Molecular diagnostics is essential for personalized treatment in oncology. However, nationwide insight into the use of molecular diagnostics in clinical practice and corresponding outcomes is lacking. This project focuses on the design, development and evaluation of a prototype dashboard that combines data from national registries and computational guidelines to reveal missing insights in molecular diagnostics in the Netherlands. Stakeholder input and practical testing highlighted challenges with data availability and usability. The project demonstrates the feasibility of using real-world data and computational guidelines to create a dashboard, supporting a continuous short-cycle learning process to enhance patient care.

AB - Molecular diagnostics is essential for personalized treatment in oncology. However, nationwide insight into the use of molecular diagnostics in clinical practice and corresponding outcomes is lacking. This project focuses on the design, development and evaluation of a prototype dashboard that combines data from national registries and computational guidelines to reveal missing insights in molecular diagnostics in the Netherlands. Stakeholder input and practical testing highlighted challenges with data availability and usability. The project demonstrates the feasibility of using real-world data and computational guidelines to create a dashboard, supporting a continuous short-cycle learning process to enhance patient care.

KW - Humans

KW - Netherlands

KW - Neoplasms/diagnosis

KW - Medical Oncology/standards

KW - Practice Guidelines as Topic

KW - Molecular Diagnostic Techniques/standards

KW - Registries

KW - User-Computer Interface

KW - Pathology, Molecular/standards

KW - Short-cycle evaluation

KW - Observational data

KW - Decision algorithms

KW - Genetic testing

KW - Cancer

UR - https://www.scopus.com/pages/publications/105005816811

U2 - 10.3233/SHTI250631

DO - 10.3233/SHTI250631

M3 - Conference contribution

C2 - 40380734

T3 - Studies in Health Technology and Informatics

SP - 1393

EP - 1397

BT - Intelligent Health Systems – From Technology to Data and Knowledge

A2 - Andrikopoulou, Elisavet

A2 - Gallos, Parissis

A2 - Arvanitis, Theodoros N.

A2 - Austin, Rosalynn

A2 - Bennis, Arriel

A2 - Cornet, Ronald

A2 - Chatzistergos, Panagiotis

A2 - Dejaco, Alexander

A2 - Dusseljee-Peute, Linda

A2 - Mohasseb, Alaa

A2 - Natsiavas, Pantelis

A2 - Nakkas, Haythem

A2 - Scott, Philip

PB - IOS Press

Y2 - 19 May 2025 through 21 May 2025

ER -

Pasman R, Jacobs FJC, Eshuis R, de Kroon CD, Sloep M, van der Werf J et al. Integrating Real-World Data and Computational Guidelines: Designing a Dashboard for Nationwide Evaluation of Molecular Diagnostics in Oncology. In Andrikopoulou E, Gallos P, Arvanitis TN, Austin R, Bennis A, Cornet R, Chatzistergos P, Dejaco A, Dusseljee-Peute L, Mohasseb A, Natsiavas P, Nakkas H, Scott P, editors, Intelligent Health Systems – From Technology to Data and Knowledge: Proceedings of MIE 2025. IOS Press. 2025. p. 1393-1397. (Studies in Health Technology and Informatics). doi: 10.3233/SHTI250631

Integrating Real-World Data and Computational Guidelines: Designing a Dashboard for Nationwide Evaluation of Molecular Diagnostics in Oncology

Abstract

Publication series

Conference

Keywords

UN SDGs

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