Data Donations As Exercises Of Sovereignty

Patrik Hummel, Matthias Braun, Peter Dabrock

Research output: Chapter in Book/Report/Conference proceedingChapterAcademicpeer-review

21 Citations (Scopus)

Abstract

We propose that the notion of individual sovereignty encompasses more than having the power to exclude others from one’s personal space. Instead, sovereignty is realized at least in part along outward-reaching, interactive and participatory dimensions. On the basis of reflections from gift theory, we argue that donations can generate social bonds, convey recognition and open up new options in social space. By virtue of these features, donations offer the potential to advance individual sovereignty. We go on to highlight distinctive benefits of data donations, before articulating several difficulties and puzzles: data donors are bound to have a limited grip on future uses of their data and the people affected by their decision to share. Further characteristic traits of data donations come from the invasive and comprehensive character of state-of-the-art data gathering and processing tools, and the fact that the relevant sense of data ownership is far from straightforward. In order to minimize tensions with negative, protective aspects of sovereignty, we argue that thoughtful mechanisms at the level of consent procedures, the representation of data subjects in governance structures, and organizational-level constraints are necessary. Along the way, we will devote particular attention to challenges and opportunities within big data contexts.
Original languageEnglish
Title of host publicationThe Ethics of Medical Data Donation
EditorsJenny Krutzinna, Luciano Floridi
Place of PublicationCham
PublisherSpringer
Chapter3
Pages23-54
Number of pages32
ISBN (Electronic)978-3-030-04363-6
ISBN (Print)978-3-030-04362-9
DOIs
Publication statusPublished - 16 Jan 2019
Externally publishedYes

Publication series

NamePhilosophical Studies Series (PSSP)
PublisherSpringer
Volume137
ISSN (Print)0921-8599
ISSN (Electronic)2542-8349

Keywords

  • Digital sovereignty
  • Data donation
  • Data loan
  • Gift theory
  • Informational self-determination
  • Big data

Fingerprint

Dive into the research topics of 'Data Donations As Exercises Of Sovereignty'. Together they form a unique fingerprint.

Cite this